Living with Progressive Multiple Sclerosis
Overcoming the Challenges:Second Edition
June Halper, MSN, ANP, FAAN
162 pp Paperback
eISBN 9781935281252 |
According to the National Multiple Sclerosis Society, 15% of MS patients are diagnosed with the progressive form of the disease and experience symptoms such as tremor, poor coordination, difficulty walking, and other problems from the start. While an additional 50%, of those diagnosed with relapsing-remitting MS, will develop progressive MS within 10 years. Living with Multiple Sclerosis: Overcoming the Challenges, 2nd Edition is written for people who have been diagnosed with the progressive form of multiple sclerosis. It focuses on the newest advances in managing worsening symptoms and offers hope to MS patients facing the future.
This concise and practical overview educates patients about diagnosis, disease-modifying therapies, managing difficult symptoms, and coping strategies. Other topics include:
This encouraging and informative book will be a welcome addition to any patient, healthcare professional, or institutional library.- return to top -
- Top Ten Questions about Progressive MS
- Can Progressive MS be Treated?
- Vocational and Legal Issues
- A Glimpse into the Future
Reviews"Multiple Sclerosis can make life seem unlivable. Living with Progressive Multiple Sclerosis: Overcoming the Challenges is a complete and comprehensive guide to dealing with the challenges multiple sclerosis presents to simply living life...An absolute high recommendation to any who feel they may be facing this demon in the future."-- Library Bookwatch
"The language is understandable, intelligent, friendly, enlightened, and enlightening. All aspects of health issues are addressed: mental, physical, emotional, and social...This book is a 'must have' for every person with primary- and secondary-progressive MS. Treat yourself to a copy."-- InsideMS
"Every person living with or caretaking those with MS and any public or health library catering to patrons with MS nees this handbook... It's a 'must' reference for anyone living with MS."--The Midwest Book Review
"...this book makes a significant contribution to its intended audience. It provides a framework for further investigation and discussion; one which a family member, health care professional, or a person with MS can use as a starting point." -- Physical Therapy
"Dr Coyle and June Halper have created a concise, practical and useful overview of worsening MS and the dilemma faced when progression presents its challenges to patients and those who care about them. The language is straightforward and does not shy away from difficult topics yet always presents information with the reassurance of realistic hope... Both encouraging and informative, this book is a welcomed addition to the education areas of centers, resource rooms, patient libraries and professional offices." -- Dorothea Cassidy Pfohl, The Consortium of Multiple Sclerosis Centers- return to top -
ContentsIntroduction -What is Progressive MS? Definitions and New Theories
How is Progressive MS Diagnosed?
Treatment Issues - Can progressive MS be treated? Interferon betas (Avonex, Betaseron, Rebif)
Glatiramer acetate (Copaxone)
Treatment Failure - Is My Treatment Working?
Future Therapies for Progressive MS
Symptom Management - Spasticity
Bladder and Bowel
Tremor. General Issues - Establishing a Wellness Program
How to Optimize Use of Rehabilitation and Assistive Devices
Vocational and Legal Issues
Summary - Top Ten Questions about Progressive MS
Progressive MS: A Glimpse into the Future- return to top -
About the Author
June Halper, MSN, ANP, FAANJune Halper is a certified adult nurse practitioner who has specialized in multiple sclerosis since 1978. She is the executive director of the Gimbel Multiple Sclerosis Center, past president and now executive director of the Consortium of Multiple Sclerosis Centers. She is a member of the American Academy of Nurse Practitioners, the founding director of the International Organization of MS Nurses (IOMSN), and a Fellow into the American Academy of Nursing.