Living Well with Dystonia

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Sample Chapter: Chapter 1
Bestseller New Edition

Living Well with Dystonia

A Patient Guide

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Dystonia doesn’t have to rule your life. This empowering and encouraging resource, written for dystonia patients and their families and caregivers,provides an overview of a variety of dystonias including cervical dystonia, spasmodic dysphonia, blepharospasm, and writer’s cramp, and the breadth oftreatment options available. The authors also offer practical advice for improving quality of life and managing pain and other symptoms. This updatedsecond edition includes expanded discussions of new medications, chemodenervation with botulinum toxin, deep brain stimulation, genetic breakthroughs, andother areas.

Written by three acclaimed neurologists with perspectives from patients that illuminate and inform, Living Well with Dystonia will help you:

  • Understand your specific dystonia and how it progresses
  • Determine the best treatment approaches
  • Alleviate symptoms with rehabilitation exercises
  • Address the ‚Äúhidden symptoms,‚Äù such as social embarrassment

Product Details

  • Publication Date March 14, 2016
  • Page Count 200
  • Product Form Paperback / softback
  • ISBN 13 9781936303953

About The Author(s)

Daniel Truong MD

Daniel Truong, MD is a neurologist and movement disorders specialist. He is currently director of the Parkinson's Disease and Movement Disorder Institute in Long Beach, CA. He has conducted active research in the management of movement disorders, including spasmodic torticollus and other forms of dystonia. He is a pioneer in the use of botulinum toxin to manage this condition, and has lectured worldwide on the management of movement disorders.

Mayank Pathak MD

Mayank Pathak, MD is a neurologist with a special interest in the neurologic rehabilitation of movement disorders and a speaker for the National Spasmodic Torticollis Association.

Karen Frei MD

Karen Frei, MD is a neurologist specialized in the field of neurogenetics, and has conducted clinical trials on a number of movement disorders, including spasmodic torticollis.

Table of Contents



Preface to Second Edition



A Tribute to Mattie Lou Koster

1 Introduction

2 Overview of Dystonias

3 Genetics of Dystonias

4 Causes of Dystonias

5 Blepharospasm and Meige Syndrome

6 Spasmodic Dysphonia

7 Writer’s Cramp and Occupational Dystonias

8 Paroxysmal Dystonias

9 Generalized Dystonias

10 Pharmacologic Treatment

11 Chemodenervation/Botulinum Toxin

12 Deep Brain Stimulation

13 Cervical Dystonia or Spasmodic Torticollis

14 Coping

15 Rehabilitation Exercises