Living Well with Dystonia

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Sample Chapter: Chapter 1

Living Well with Dystonia

A Patient Guide

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Comprehensive information for patients with dystonia and the people close to them.

You can live well with dystonia. This empowering and encouraging resource and tool, written for both individuals with chronic condition and their families, provides an overview of a variety of dystonias, (including cervical dystonia, spasmodic dysphonia, and writerÌs cramp) and the breadth of treatment options available, as well as practical advice for improving quality of life.

Written by three acclaimed neurologists, Living Well with Dystonia will help you:

  • Understand your specific dystonia and how it progresses
  • Determine the best treatment approaches
  • Alleviate symptoms with rehabilitation exercises
  • Address the √èhidden symptoms√ì such as social embarrassment


Product Details

  • Publication Date March 15, 2010
  • Page Count 164
  • Product Form Paperback / softback
  • ISBN 13 9781932603231

Editorial Review(s)

"Living Well with Dystonia provides a balanced and easily understandable introduction to a chronic condition that is rarely discussed. Treatments and exercises are presented honestly – no miracle cures, but paths toward symptom relief. Simple diagrams of the nervous system and affected limbs or muscles are very helpful, and comments from actual patients personalize the discussions throughout. Well written. Recommended." - CAPHIS Consumer Connections

"This book is a life-altering experience, easy to comprehend, the pictures of the disorder give you a clear insight."-Robert Farmer, Former President, National Spasmodic Torticollis Association

"This kind of comprehensive guide to dystonia has long been needed. It will be an invaluable resource to patients, their families and caregivers."-Bonnie Strauss, President and Founder, The Bachmann-Strauss Dystonia & Parkinson Foundation, Inc.

"Living Well with Dystonia is an extraordinary resource written by an extraordinary man. Dr. Daniel Truong has dedicated his professional life to the Dystonia community and we have been blessed by his dedication. Without his leadership, inspiration, financial and professional help there probably would not be a National Spasmodic Dysphonia Association."- Larry Kolasa, Co-Founder/Past President, National Spasmodic Dysphonia Association

"Dr. Daniel Truong and co-authors have done a great service to patients with blepharospasm and other forms of dystonia by providing a clear and readable discussion of the disorders, their causes and therapeutic alternatives. Ignorance enhances fear and disability, whereas knowledge allows patients and their families to optimally adjust to chronic conditions, thereby improving their quality of life. This book should be read by all dystonia suffers and their loved ones."-Mary Lou Koster Thompson, President, Benign Essential Blepharospasm Research Foundation

About The Author(s)

Daniel Truong MD

Daniel Truong, MD is a neurologist and movement disorders specialist. He is currently director of the Parkinson's Disease and Movement Disorder Institute in Long Beach, CA. He has conducted active research in the management of movement disorders, including spasmodic torticollus and other forms of dystonia. He is a pioneer in the use of botulinum toxin to manage this condition, and has lectured worldwide on the management of movement disorders.

Mayank Pathak MD

Mayank Pathak, MD is a neurologist with a special interest in the neurologic rehabilitation of movement disorders and a speaker for the National Spasmodic Torticollis Association.

Karen Frei MD

Karen Frei, MD is a neurologist specialized in the field of neurogenetics, and has conducted clinical trials on a number of movement disorders, including spasmodic torticollis.

Table of Contents

1 Introduction
2 Overview of Dystonias
3 Genetics of Dystonias
4 Causes of Dystonias
5 Blepharospasm and Meige Syndrome
6 Spasmodic Dysphonia
7 Writer's Cramp and Occupational Dystonias
8 Paroxysmal Dystonias
9 Generalized Dystonias
10 Pharmacologic Treatment
11 Chemodenervation/Botulinum Toxin
12 Deep Brain Stimulation
13 Cervical Dystonia or Spasmodic Torticollis
14 Coping
15 Rehabilitation Exercises