Living with Chronic Fatigue Syndrome

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    For people with chronic fatigue syndrome (CFS), balancing your life with rest and activity makes for a more stress-free lifestyle. It also calls for making changes to your current one. Think about what you would change to nurture yourself. Consider the following supports that can help you do so. Get a handicap sticker for your car to save steps walking to your destination. Do not make too many commitments. Learn how to say no and to delegate tasks. Consider adapting your daily living activities...Read More
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    For people with chronic fatigue syndrome (CFS), there are a variety of health care professionals (HCPs) to choose for your health care team. Initially, you need to find someone to diagnose your illness and help manage your symptoms. To build your team, you may begin with one HCP as an overseer, perhaps a physician called a general practitioner or primary care physician, or an advanced practice nurse. In the United States, medicine is specialized, so a common approach to managing a multisystem illness...Read More
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    People with chronic fatigue syndrome (CFS) are prone to postexertional malaise (PEM), an extreme, prolonged exhaustion that is the result of a worsening of symptoms following any kind of physical or mental exertion (not necessarily from intense or strenuous activity). To try to avoid PEM, get an overall picture of how you spend your energy dollars (EDs). Every activity has an energy cost. The goal is to have some EDs left at the end of each day. For example, if you begin with 10 EDs, aim to have...Read More

Meet the Expert!

Lorraine Steefel

Lorraine Steefel's interest in Chronic Fatigue Syndrome (CFS) developed when her daughter Trisha was diagnosed at age 12 with the illness. As a parent and an RN, she searched for information necessary to help her daughter cope with and manage it. She became a volunteer trainer in the program Chronic Fatigue Syndrome (CFS): A Diagnostic & Management Challenge, prepared and sponsored by the CFIDS Association of America, and presented this program to RNs and other healthcare professionals across...

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